Skip to content

Denomme: CRPS Leaves Her in Constant Agony

Day 3 · 6:24:27 · Crystal Denomme · Shawn Buckley

  • 🦵 Left leg from mid-thigh to mid-calf developed complex regional pain syndrome with purple discoloration, temperature swings and texture changes.
  • 😣 She lives in constant agony, cancels all plans, orders groceries in, and would be bed-bound if not testifying.
  • 🚫 Former outdoor athlete can no longer hike, skate, kayak or perform any of the activities that defined her life.

Diagnosis of CRPS and total loss of independence and mobility.

← Denomme: Full-Body Road-Rash Pain After Second Dose | Denomme: Clothes Hurt, Falls Shatter Femur and Teeth →

Transcript

Crystal Denomme · 6:24:27

So I was on vacation, so I spent 4 or 5 days, I guess, like in that kind of pain. So it was And as that, like, as the skin pain started to resolve, my right leg started to hurt. So it was like kind of blended one into the other. And then that's when I spoke to a colleague and she said, like, could it be like maybe a blood clot or something like that? Because she knew I had— it was about 2 weeks in by then. And, um, I said I didn't even think of that, you know. So I went to the urgent care to see, and he said he think that that's what it was. So sent me, sent me home. And with— as that started to resolve, my left knee started to feel swollen. And that's where the problem is at. It, um, I developed CRPS.

Crystal Denomme · 6:25:27

It's complex regional pain syndrome. I'm in constant agony all the time. I, I, I can't— I cancel plans all the time. If, if this wasn't this today, I wouldn't have been here today. I would be at home in my bed. Um, I have to order in my groceries. I can't do anything. I can't do anything at all anymore.

Shawn Buckley · 6:25:53

It's okay. So I, I just— I want to stick with your left knee for a second, because— and when you say knee, it's kind of like mid-thigh to mid-calf. So you're really talking about half your leg. Yeah. My understanding is you feel pressure on there. There's temperature changes. It gets cold, but also the texture of your skin changes.

Crystal Denomme · 6:26:16

Yeah, it's— my leg is pretty much purple most of the time. If I'm standing there, you would think that you're looking at two separate people.