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Violent Full-Body Tremors and Thirteen Brain Lesions

Day 1 · 6:11:25 · Shawn Buckley · Patrick Provost · Kevin Street

  • 🫨 Seizures progressed to violent full-body tremors lasting up to two hours while he remained fully conscious and unable to stop them.
  • 🧠 Neurologists called the presentation fascinating; MRI showed multiple lesions linked to blood-brain barrier permeability.
  • 🚶 He now walks like he is drunk, must consciously command every joint, and was told a wheelchair would end walking forever.

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Transcript

Shawn Buckley · 6:11:25

Yeah. My understanding is you also started getting seizures that day that you blacked out and collapsed. Can you share about those? Because my understanding is they went on for about 2 and a half years.

Patrick Provost · 6:11:35

Yeah.

Kevin Street · 6:11:36

So it started out with the seizure and, and moving forward from the seizure, from that time it went into full tremors. And my tremors were, was lasting for about 2 and a half— well, I still have them today. I just don't have what I had before where my whole body was in, in full, um, full tremors. And obviously the neurologists and everything were there to witness. And I still remember the first neurologist that saw me, he just looked at me and he was conversing with his other neurologist because he brought 3 others in with them. And, and, and they were saying that it was fascinating. I'll never forget it.

Shawn Buckley · 6:12:18

So what— how much of your body would be experiencing these tremors?

Kevin Street · 6:12:24

All of it.

Shawn Buckley · 6:12:25

So that had to be quite painful and exhausting.

Kevin Street · 6:12:29

I would go sometimes for an hour and a half, 2 hours of shaking on the gurney, so bad that even the people around me were getting annoyed because, you know, like the wheelchair waiting in, in um, in the emergency room department, even after assessing me, they'd put me back in there and make me shake in front of everyone. And it was bad. It was, it was violent.

Shawn Buckley · 6:12:52

And you're not— you're aware when this is happening? It's not like a grand mal seizure or something?

Kevin Street · 6:12:58

No, you're 100% there.

Shawn Buckley · 6:13:00

And you, you have no ability to stop it?

Kevin Street · 6:13:03

Once it goes, it goes. And then it's just a matter of letting it ride out until your brain just gets tired and just doesn't do it, I guess, anymore. And And I just, I got to go to bed and I'm a wreck for, you know, 2, 3 days. It'll mess me up for some, for some reason. I don't know if it's through protocols that I've done. I've really, you know, I've relieved a lot of my bad tremors, but, you know, nerves and things like that often play mess with your brain. And when my brain swells, cells, um, nothing works anymore.

Shawn Buckley · 6:13:42

And you're still today— you spoke about brain lesions. My understanding is, is you have 13 of them.

Kevin Street · 6:13:49

Yeah, the, uh, the last MRI result, um, they didn't do a signature on it, which generally I've found— I'm not a doctor, but I can tell you that I've learned a lot about this stuff, unfortunately. Um, and They've, they said that there's no new lesions, but there are multiples that they have found. Um, and I believe they said it was due to increased permeability of the, uh, brain blood-brain barrier is, is what was, uh, shown.

Shawn Buckley · 6:14:22

Okay. And can you describe for us how you walk today?

Kevin Street · 6:14:26

Yeah, I walk like I'm drunk all the time. And And, you know, I literally have to tell my body what to do and how to do it every time I do something. I can't run. I can't jog or anything like that because I know better not even to attempt to make my brain do that. But I literally have to tell my feet when to move, what direction to move in, whether I should bend my knee or not because I don't have any strength in any of my joints anymore. My elbows, my knees, my ankles, all that stuff, they all— if I don't pay attention, I, I'll hurt myself. I was told not to stay in a wheelchair and that if I ever— if I continued in the wheelchair, then I would never walk again. So I've been trying to stay on my feet and keep my brain connected as much as it possibly can, and, uh, try to be as human as possible.